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Dr. Nora Fayed BScH, MScOT, PhD, OT Reg. (Ont.)
Dr. Nora  Fayed
Associate Professor
Contact Information
Contact information: Louise D. Acton Building, Room 224
Internal telephone extension: 36101
External telephone: 533-6101
Social Media

Profile Summary

Dr. Fayed’s areas of expertise are: (i) determinants and predictors of quality of life among children with chronic health conditions, (ii) child and parent patient-reported outcome and experience measures (PROMs/PREMs), (iii) health services evaluations, and iv) application of the WHO International Classification of Functioning, Disability and Health (ICF) to child chronic health services research. In addition, she has clinical experience in driver rehabilitation, and feeding obtained from Bloorview Kids Rehabilitation in Toronto.

Past achievements include a Marie-Curie European Union Fellowship at the [former] ICF Research Branch of the World Health Organization in Munich Germany from 2008-2009; CIHR funded postdoctoral fellowship 2012-2015 held at University Health Network Division of Health Care and Outcomes and McMaster Department of Pediatrics; a Canadian Child Health Scientist Career Enhancement Award; and the Micheal deGroote Fellowship Award. She is currently the co-Chair of the International Society of Quality of Life (ISOQOL) Canadian Special Interest Group.

Research Program

There is a strong need in service provision to understand what is important to children with chronic health needs and measure it. Good measurement tools are essential to moving health care innovations forward but they also have to include the types of things that will have an impact on children’s lives.

“Everything that Counts” is a research program dedicated to learning about what is important to children growing up with chronic health conditions, then evaluating health and social services based on what is important using the best measures.

Research Team

       Graduate Students:

Eshetu Haileselassie EngedaEshetu is a PhD student and Assistant Professor of paediatric nursing at the University of Gondar in Ethiopia. He has an extensive background in child health nursing education and research, including involvement in the Nursing Education Partnership Initiative (NEPI) as a principal investigator and project manager. Eshetu has published a number of scholarly articles in peer-review journals and has participated in various international scientific conferences.


Research area: Health related quality of life (QOL) among children and adolescents with cancer.



• PhD Student, Rehabilitation Science, Queen's University, Kingston, Canada
• MSc in Pediatrics Nursing, University of Gondar, Ethiopia (2013) 
• BSc in Clinical Nursing, University of Gondar, Ethiopia (2009)


Supervisors: Nora Fayed


Laura WilliamsLaura is a DSc student in the Rehabilitation and Health Leadership program and has worked extensively in patient engagement and patient experience in children’s rehabilitation, provincial health policy and adult acute settings. She currently works as the Senior Director of Patient Experience for the University Health Network and has articles published in peer-review journals focusing on patient engagement in organizational decision-making, collection of equity data in pediatric settings and the development of patient portals in healthcare.


Research area: Community living for individuals with developmental disabilities, engaging patients/clients in organizational decision-making, best practices in patient engagement with digital health platforms and patient reported experience measures (PREMs) in hospital settings.



• DSc Student, Rehabilitation and Health Leadership, Queen's University, Kingston, Canada
• Master of Social Work, York University
• Bachelor of Social Work, York University
• BA in Drama, Queen’s University


Supervisors: Nora Fayed

Lindsay CrawfordLindsey is a DSc student in the Rehabilitation and Health Leadership program with previous senior leadership roles in two community hospitals, the Royal Victoria Regional Health Centre and Scarborough Hospital. She currently works at Holland Bloorview Kids Rehabilitation Hospital with the mandate to redesign Ambulatory Care. Lindsey also is a board member at Sherbourne Health in Toronto where she chairs the Quality Committee and co-leads its strategic planning process.


Research area: Partnerships between health care practitioners, researchers, and patients to improve the transfer of evidence into practice.



• DSc Student, Rehabilitation and Health Leadership, Queen's University, Kingston, Canada 
• MHSc in Health Administration, University of Toronto, Toronto, Canada (1993) 
• BSc in Physical Therapy, University of Toronto, Toronto, Canada (1987)


Supervisors: Nora Fayed

Malcolm McNeilMalcolm is an MSc student in the Rehabilitation Science program interested in quality of life of young people with disabilities. As part of his military family upbringing, Malcolm lived in Scotland, Germany and England.


Research area: Child and family engagement in the measurement of health and quality of life.



• MSc Student, Rehabilitation Science, Queen's University, Kingston, Canada
• BA in Health Studies, Queen’s University, Kingston, Canada (2017)


Supervisors: Nora Fayed

Samantha NoyekSam is a PhD student in the Rehabilitation Science program studying methods of obtaining patient-reported outcome (PROM) data from children with medical complexity.


Research area: Emotional wellbeing of children with medical complexity (CMC). Patient-reported outcome measures (PROMs) for children youth and caregivers, methods of obtaining self-report from children with communication impairments.



• PhD Student, Rehabilitation Science, Queen's University, Kingston, Canada
• MSc in Global Health, McMaster University, Hamilton, Canada (2017) 
• BSc in Psychology, Western University, London, Canada (2016)


Supervisors: Nora Fayed & Claire Davies

       Recruitment Information:

Do your children have feeding difficulties or do they use medical technology?

Families of complex kids who use medical technology (like feeding tubes or central lines) or families of kids with health conditions that affect their eating and feeding, WE NEED YOU.

We worked with families like you and developed an assessment to show your health providers and researchers how you are truly doing. To make this assessment work, we need lots of families to fill it out.

Do it on your smartphone or computer by clicking this link

Participants can also complete the survey assessment tool in person, or by paper and pencil through the mail, by contacting the research project manager, using the email, the Facebook page “Everything that Counts” or by zoom or skype with a team member, email or call us at: or 613-533-6000 x79386


Currently recruiting master’s students interested in measurement and analysis of latent constructs.

Current Projects

  1. Monitoring home care, medical technology access, and caregiver health of children with complexity during COvid-19
  2. Patient-Engaged Evaluation of Complex Care for Kids Ontario
  3. Developing Patient Reported Experience Measures of Medical Technology and Feeding/ Eating for Children with Complex Health Conditions and their Caregivers
  4. Emotional Wellbeing of Children with Communication and Motor Impairments
  5. Malaria-Related Disability Among African Children

Volunteers For Teaching & Research

     If you are interested in participating in teaching or research, please contact us at:


     Pubmed Articles

     Research Impact on Google Scholar