Profile Summary
Dr. Fayed’s areas of expertise are: (i) determinants and predictors of quality of life among children with chronic health conditions, (ii) child and parent patient-reported outcome and experience measures (PROMs/PREMs), (iii) health services evaluations, and iv) application of the WHO International Classification of Functioning, Disability and Health (ICF) to child chronic health services research. In addition, she has clinical experience in driver rehabilitation, and feeding obtained from Bloorview Kids Rehabilitation in Toronto.
Past achievements include a Marie-Curie European Union Fellowship at the [former] ICF Research Branch of the World Health Organization in Munich Germany from 2008-2009; CIHR funded postdoctoral fellowship 2012-2015 held at University Health Network Division of Health Care and Outcomes and McMaster Department of Pediatrics; a Canadian Child Health Scientist Career Enhancement Award; and the Micheal deGroote Fellowship Award. She is currently the co-Chair of the International Society of Quality of Life (ISOQOL) Canadian Special Interest Group.
Research Program
There is a strong need in service provision to understand what is important to children with chronic health needs and measure it. Good measurement tools are essential to moving health care innovations forward but they also have to include the types of things that will have an impact on children’s lives.
“Everything that Counts” is a research program dedicated to learning about what is important to children growing up with chronic health conditions, then evaluating health and social services based on what is important using the best measures.
Eshetu is a PhD student and Assistant Professor of paediatric nursing at the University of Gondar in Ethiopia. He has an extensive background in child health nursing education and research, including involvement in the Nursing Education Partnership Initiative (NEPI) as a principal investigator and project manager. Eshetu has published a number of scholarly articles in peer-review journals and has participated in various international scientific conferences.
Laura is a DSc student in the Rehabilitation and Health Leadership program and has worked extensively in patient engagement and patient experience in children’s rehabilitation, provincial health policy and adult acute settings. She currently works as the Senior Director of Patient Experience for the University Health Network and has articles published in peer-review journals focusing on patient engagement in organizational decision-making, collection of equity data in pediatric settings and the development of patient portals in healthcare.
Lindsey is a DSc student in the Rehabilitation and Health Leadership program with previous senior leadership roles in two community hospitals, the Royal Victoria Regional Health Centre and Scarborough Hospital. She currently works at Holland Bloorview Kids Rehabilitation Hospital with the mandate to redesign Ambulatory Care. Lindsey also is a board member at Sherbourne Health in Toronto where she chairs the Quality Committee and co-leads its strategic planning process.
Malcolm is an MSc student in the Rehabilitation Science program interested in quality of life of young people with disabilities. As part of his military family upbringing, Malcolm lived in Scotland, Germany and England.
Sam is a PhD student in the Rehabilitation Science program studying methods of obtaining patient-reported outcome (PROM) data from children with medical complexity.